Agnes Nsofwa - Co- Founder
Agnes Nsofwa is a mother of four children with the youngest child being born with sickle cell anaemia in 2009. She is a Data Analyst by profession who became a Registered Nurse, a career that she found herself in due to the illness of her daughter. In 2012, she changed careers from Banking to Nursing so that she could understand Sickle Cell Disease (SCD) and what her daughter was going through.
Agnes also hold a bachelor’s degree in business and a Diploma in accounting with experience in taxation and banking.
With her lovely husband Preston, they founded Australian Sickle Cell Advocacy Inc (ASCA), an association raising awareness about SCD in Australia.
In 2014, the couple started a SCD Awareness Facebook page to support other people affected. The group was formally registered as a not for profit organisation in October 2018.
Since founding ASCA, Agnes has been spearheading awareness about SCD in Australia where the disease is considered as rare. Her association focuses on awareness and education programs, community outreach, Peer to peer support, advocating for scientific research.
Agnes and ASCA team have expanded the association to 5 states of Australia. Within the 12 months of being registered, they advocated for the formation of SCD clinical guidelines in Australia. They designed an E-learning course for primary nurses. They have also taken the cause to the Australian Parliament asking for better services for people affected by SCD.
Her goal is to support SCD programs and initiatives that enhance the lives of people from disadvantaged backgrounds.
Agnes is originally from Zambia and has lived in Australia for the past 16 years. She speaks two of the seven Zambian local languages, Bemba and Nyanja.