Our Team

Biba Tinga - Co- Founder

Biba Tinga is the mother of four.  Her dedication to the Sickle Cell Disease, SCD cause started over 30 years ago when her first child was born with the condition.
As a caregiver, she has a unique understanding of the needs of individuals and families dealing with SCD. She has managed the disease in developing countries (Niger, her birth country) as well as in North America.
Since 2008, she has been active in the sickle cell community and has held various leadership positions in Canada. She has leveraged her parental experience in experimenting with new medications, evaluating treatment options, managing the risks associated with SCD and its various complications to advocate on behalf of patients and families in Canada.

She holds a Bachelor’s Degree in Business Management. A polyglot, she is fluent in French, English as well as other African languages (Zarma, Haoussa and Wolof), valuable assets for  the  SERI project. Writing is one of her passion. She holds a column in the web magazine, Fiers d’Elles, where she shares her thoughts, portraits and success stories of women.

She is currently the President/Executive Director of the Sickle Cell Disease Association of Canada/Association d’Anémie Falciforme du Canada (SCDAC/AAFC) which is the national umbrella for Canadian Sickle Cell provincial groups. Prior to that, she was the Vice-President of AAFQ (Association d’Anémie Falciforme du Québec), the provincial organization for sickle cell disease (SCD) in Quebec.