Sickle Cell Warrier

Leyla Hamidou, Niger English

My name is Leyla Hamidou, I am Nigerian and I live in the capital, Niamey.
I’m 35 years old and I live with sickle cell anemia. I am the eldest of three children.
I was diagnosed when I was 2 years old. During my childhood, I did not have many crises.
However, I realized that my health was fragile a little before my 10 years.
When I reached an adolescence age that all the complications started. I had attacks of pain in the joints, attacks of fatigue after long efforts, stress or any emotional shock.
Over the years, I have had several surgeries following complications that caused necrosis in my two hips and one of my shoulders. Painful moments that I could overcome thanks to the relentless support of my loved ones.
I owe my survival to my parents. They fought for me when I didn’t understand him yet. They sacrificed a lot to give me the best care available. They still continue to do so.
The operations are painful and the rehabilitation even more painful.
Because of this disease, I found myself in reduction centers where I began to walk again, to live with several foreign bodies in me after each surgery.
I even found myself in intensive care following a severe crisis.
Now I am feeling better and overcoming the challenges this disease poses for me every day. I can say that my life is a constant struggle. I have been Hydroxyurea for 17 years now. And this drug helps me a lot.
Despite sickle cell anemia, I manage to have a stable life, to live passions.
I am passionate about photography and fashion.
I love taking photos on all occasions. So, I’m not missing out. We live with a sneaky disease that attacks anytime. Between two crises, you have to live, well.
New treatments that improve the quality of life for those living with this disease are available.
Sickle cell disease can be cured even today, so we don’t lose hope….