Meet The Team
Agnes Nsofwa - Co- Founder
Agnes Nsofwa is a mother of four children with the youngest child being born with sickle cell anaemia in 2009. She is a Data Analyst by profession who became a Registered Nurse, a career that she found herself in due to the illness of her daughter. In 2012, she changed careers from Banking to Nursing so that she could understand Sickle Cell Disease (SCD) and what her daughter was going through.
Biba Tinga - Co- Founder
Biba Tinga is the mother of four who live in Montreal, Canada.
Her dedication to the Sickle Cell Disease, SCD cause started over 30 years ago when her first child was born with the condition.
As a caregiver, she has a unique understanding of the needs of individuals and families dealing with SCD. She has managed the disease in developing countries (Niger) as well as in North America.
Lwimba kasongo - Committee Member
Yemi Moses - Committee Member
Yemi is a graduate from North Carolina Central University in 1998 with a B.S. degree in Human Sciences and moved to Brooklyn, NY, where she furthered her education and became a certified Special Education teacher. While in NY, Yemi taught Special Education to middle school students; she was an assistant basketball coach and helped to create and coach a cheer-leading squad. She also organized and led an HBCU (Historically Black Colleges and Universities) College Tour for the students at her school, among many other things.
Enam Sefakor - Scientific Advisor
Living in The Netherlands and roots in Surinam with more than 20 years of experience in the sickle cell field of which 5 of those as chairman of IXL Sickle Cell Awareness. At this non-profit we develop programs and campaigns to raise awareness and improve social and economic quality of life.
Mary Akua Ampomah, Ghana Scientific Advisor SERI
Mary Akua Ampomah is a Clinical Psychologist by profession at the largest adolescent and adult sickle cell clinic in Ghana- Ghana Institute of Clinical Genetics.
She holds a Master of Philosophy Degree in Clinical Psychology. Currently, she is in a PhD program. Her passionate goal is to utilize clinical and community based research to improve the psychological well-being, quality of life and advocacy for individuals living with sickle cell disease (SCD). Her passion led to a number of research collaborations with Investigators from both local and international institutions to understand SCD in a low resource setting.One of her collaborations with Sickle Cell Foundation of Ghana helped produced a culturally-sensitive and evidence-based SCD counseling in Ghana (GENECIS). Culturally – sensitive and evidence-based research has not only improved her work as a Clinical Psychologist working with SCD clients struggling with psycho-social burden of living with SCD but also helped shape her advocacy in a low resourced setting.